This site is for those searching for answers to a debilitating fatigue that strikes young people and leaves them struggling but unable to even get out of bed. Postural Orthostatic Tachycardia Syndrome (POTS) often goes undiagnosed, and parents are left searching for answers and help for their children. Many of these young people are isolated from friends and school because of their condition, and as a result are unable to complete their education.
Physicians, including pediatricians, and school administrators alike are often unaware of POTS and so don’t recognize the symptoms. There is no cure for POTS. Yet, there is good news! There are treatments that can help the young person with POTS function, complete their education, and remain part of their family and friends’ lives. More good news is that almost always the teen with POTS will “outgrow” the syndrome by early adulthood.
Often POTS begins suddenly after an illness – often viral with a high fever. My daughter caught mononucleosis at her elementary school in 5th grade in the spring of 2003, when she was not yet 11, and that was the onset of POTS for her. For the next 5 1/2 years, we searched for answers, physicians, medications, anything t0 help her. In the fall of 2008, we were referred to Dr. Daryl Lynch, Director of the Teen Clinic, at Children’s Mercy Hospital in Kansas City. At last we had found someone who immediately recognized her symptoms, was knowledgeable about POTS, and experienced in treating this syndrome. Following testing, the diagnosis was confirmed.
With effective treatment in place, she was able to cope with POTS as best as possible, and today at age 20 is beginning her junior year in college, as the symptoms of POTS gradually fade away.
Click on “About” to learn more about POTS. Posts to this site will include sharing of articles about POTS, to provide greater understanding for parents, teachers, physicians and other caregivers. We welcome posts and stories from others who have lived through or are living with POTS.
This site is dedicated to all those who are struggling with POTS today and those who are trying to support them and help find answers. And it is dedicated with gratitude to those who tried to help her along a difficult journey – a key group of friends, physicians, and educators.
A special thank you to Mayo Clinic Pediatrics for their excellent work, treatment, research and education about POTS.